What We Do
We connect families with each other, community resources, experienced parent mentors, tools to navigate complex systems in healthcare and insurance and more.
By training families, we are empowering them to advocate for the needs of their child and to lead in their local communities and beyond.
In serving as leaders alongside families, we are educating healthcare providers, policy makers, teachers and others on the improved outcomes from including, listening to and honoring the voices of these families.
Our unique network of staff and volunteers have personal experience navigating the healthcare journey of an individual with a special healthcare need, chronic illness or disability.
We serve families and children across all diagnoses and all ages.
Our Values
Family Centered Care: We make space for families and value their perspective. We ensure that families are at the center of all of our programs, and regularly engage them to ensure our services align with their needs.
Advocacy: We educate families on how to advocate for themselves at an individual, community, and national level. We elevate families’ stories to serve as a catalyst for systemic change. We actively participate in public policy advocacy.
Accountability: We endeavor to hold systems accountable for providing families the services they are entitled to.
Equity: We endeavor to consistently value the voices and experiences of all people including all cultures, all languages, all sexual orientations, all gender identities, all abilities, and all religions. We recognize the intersectionality of race and disability and are committed to anti-racist and anti-ableist practices.
Collaboration: We focus on partnerships to strengthen resources for families and believe in the power of working together.